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Forum Fireworks Tackle the Question: Who Is Qualified to Be a Patient Advocate?

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(Originally published September 2011. Updated September 2019) Fireworks erupted in the APHA Forum recently. I call them fireworks because those involved are so passionate about their work – no matter what their points of view. Fireworks are awe-inspiring and truly beautiful, even if they don’t accomplish much, which is exactly what transpired. The questions and statements that caused that passion are worth sharing here, because they can help all of us clarify our roles in this growing profession of patient advocacy and navigation. The initial question was ” I’d love to hear from advocates –like me– who do not have […]

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Got Business? AdvoConnection One Day Business Institute – Reserve Your Spot Now

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Most members of AdvoConnection are aware of the upcoming Business Institute, but for those of you who aren’t members – you are invited, too! The cost to attend goes up this week, so this is the time to make your commitment. Topics will include legal, insurance, marketing, tools, money and certification. Here are some of the questions we will answer: Do you have the right insurance at the best price? What forms do you need and what makes your contracts legally binding? What’s the latest on certification issues? How can you deal with business problems your client poses, like not

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Happy Birthday AdvoConnection! Will You Help Us Celebrate?

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Two years ago today, we launched AdvoConnection as the premier directory for patients and caregivers to find a health or patient advocate or navigator, and to support the business starting and growing efforts of advocates. Happy Birthday to Us! You might be interested in what this journey has looked like so far: > More than 270 people are advocate or pre-advocate members of AdvoConnection. Most are in the process of exploring advocacy as a career. > 12 non-profit patient advocacy organizations are registered with AdvoConnection. > More than 2,100 people visit the directory site each month in search of an

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A Patient Advocate Is Just Like….

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In a conversation with a group of friends, Lisa told us she has decided to buy her first house. She feels like the market is right – prices are low, interest rates are low – so why not take the plunge? We responded by providing advice to her based on our own experiences with buying homes. “Be sure to get it inspected.” “Shop around for mortgage rates.” “Sign a contract with a buyer’s agent, otherwise your interests won’t really be represented.” “Beware of shortsales and bank repos because I’ve heard really bad things about those on the news.” … and

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YOMs – and That Sense of Entitlement

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It arrived in my email a few days ago – a demand for a reply. It came from a person who reads my articles at About.com. She had sent me a question the day before regarding trouble she was having getting copies of her records from her doctor. I had not yet responded to that email. The second one arrived, shouting in capital letters: WHY DIDN’T YOU ANSWER MY QUESTION? I SENT IT YESTERDAY AND YOU HAVEN’T ANSWERED IT YET! There it is. A simple example of that sense of entitlement we all seem to be dealing with. I get

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Using Advocacy Specialties to Create Niches

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When I glance at the many topics our AdvoConnection members post about in the Forum, I find certain people posting on certain kinds of topics. That leads me to believe that they have special interests – or expertise – in those topics…. Which leads me to thinking that the patients and caregivers who are hiring them have interest in those topics, too. So why not use them in marketing? For example: One such topic has developed around interest in integrative approaches to care. At least one of the health advocacy educational programs was developed to focus strictly on integrative care.

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Patient Advocates and HIPAA

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Lately I’ve run into questions and discussions about patient advocates or navigators and HIPAA, so it seems a good topic for today’s post. I’ll begin with a disclaimer: there’s no one on this green planet that can give you ALL the answers as they relate to HIPAA! No, not even the lawyers who live it every day. It’s complex and daunting. But there are some basics that might be useful. Here are the basics that can be useful to advocates: 1. It’s HIPAA, not HIPPA. HIPAA stands for the Health Insurance Portability Accountability Act. Notice, it doesn’t say anything about

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