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Mentors and SIGs – Our Best Resources Yet

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Updated March 2017 When APHA and AdvoConnection were launched in 2009, the resources that existed for starting and growing a private, independent advocacy practice were few and far between. There weren’t many advocacy experts, because with only a few exceptions, there just weren’t many people with the track record to call themselves experts. Certainly there were experts in different useful topics; for example lawyers or insurance people who could take what they knew and apply it to advocacy. So we took advantage of those experts’ good graces to build the first foundations for practices going forward. We still rely on […]

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The Real Cost of Selling One’s Soul

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I heard from a friend that he recently sold his start-up business after years of building it to do just that. Wow! I was so impressed! “Take a break!” I replied. “I can only imagine how much work that was and how much money you must have made!” Yes, he told me. It was a LOT of work and he is exhausted. But, he confided, he really didn’t make much money in the sale. What? I was flabbergasted… Then I learned why. It seems that he and his partners, in order to raise the money they needed to make their

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Henry Ford, Mary Kay, Success and Patient Advocates

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It’s a holiday week, a quieter time for many businesses, and for that I hope to leave you with some food for thought to ponder your success as an advocacy practice owner… One of my favorite quotes is one that has been attributed to two well-known people. Henry Ford said it first: If you think you can do a thing or think you can’t do a thing, you’re right. Then Mary Kay Ash (as in cosmetics) put it more eloquently: If you think you can, you can. And if you think you can’t, you’re right. Of course, the translation of

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RIP Ramona – With Appreciation for The Lessons She Taught Us

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Ramona – whose real name was Rosemary – has died. She did it (mostly) her way. I first shared Ramona/Rosemary’s story with you a few months ago. She had contacted me through my patient empowerment work asking me to help her die. After a heinous surgical medical error many years ago, she could no longer be treated to provide (by her own definition) any quality to her life. So she wanted to put an end to her misery. Her primary care doctor, fearful he would be arrested, refused to help her. After thinking about it long and hard, I decided

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Eight Hour Day? Get Paid for Sixteen

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Patient advocate Joan H. Elper has been an independent advocate for more than a year now. She has worked with seven clients during that time, and is growing her practice slowly but surely. Her focus is medical-navigational in nature, helping mostly elderly parents of the adult children who hire her understand what their doctors tell them. She also has two cancer patients who want to self-direct their care more than the doctors would like, so some of Joan’s reward comes from seeing those clients make informed decisions based on their own wants and needs, and finding that their doctors have

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Death, Dying, Unhappiness and Misery Have Been on My Mind

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Several weeks ago I was contacted by Ramona*, a woman in her 50s who is leading what she considers to be a horrible, no-quality life. She is tied to machines for all but about 2 hours a day, she needs regular surgeries to stay alive, she can’t eat food (liquids only), there is no prospect for improvement, and she has no family… She has no hope, and she wants to die. She has tried discussing options with her doctors, but to no avail. She wants to stop her treatment, enter hospice care and receive palliative care instead. That should be

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Let’s Do a Refresh for 2014 – A Tipping Point for Private Advocacy!

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The holidays are behind us. The fre-e-e-zing cold has arrived in most of North America. We’re feeling a little sluggish perhaps…. and maybe need a kick in the behind to get ourselves going in 2014. 2014. That means we’re in our fifth year of building this new profession…. Let’s make this the Year of the Independent Patient Advocate’s Tipping Point! (can I hear an A-MEN?) Are you ready for it? If not, and if you’re in practice working with clients, helping them with the dozens of services they need, then you can probably use a reminder and refresher for those

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