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When Is an Advocate Not an Advocate?

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image - no excuses

Twice in the past week, I heard from people whose APHA memberships expired, explaining why they didn’t renew. In both cases excuses in the form of complaints about their memberships were made. A little bit of research turned up the facts that those complaints were at least misguided. I responded to each of them about their frustrations. In both cases, they felt insulted. Now, don’t get me wrong. I receive criticism and suggestions on a regular basis, sometimes including good, usable, feedback. I’m always appreciative of constructive feedback and ideas even if it’s in the form of criticism. That’s how […]

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Powerful, Useful, and Beneficial — From HBO’s Vice Media: Patient Advocates Can Save Your Money and Your Life

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In April of this year, patient advocates convened in San Diego for the APHA Summits to mix and mingle, learn, and talk shop… Joining us was the video crew from HBO’s Vice News, led by producer Amanda Pisetzner – a delightful group of young people, with so much talent and enthusiasm, asking great questions… They worked in the background during our networking event, and separately they met with two of our advocates, AnnMarie McIlwain, and Karen Vogel, as they conducted their important work. The crew even met with client-patients who AnnMarie and Karen found were willing to discuss their own

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The Rest of the Story X 4

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Channeling Paul Harvey today…. (Don’t know who Paul Harvey is? Maybe you’re too young, or you never spent much time listening to Talk Radio… Paul Harvey was famous for his radio broadcasts called “The Rest of the Story.” His stories always featured a twist or turn, or something unexpected.) Over the past few months, I’ve blogged about points, lessons, or stories, some of which have interesting follow-up or twists to them. So I’ve put them into one post for you – and thus we’re channeling Paul Harvey.

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When Life Defies Logic

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…then it’s time to get logical. And logic will triumph! As many readers know, I’m in the process of coordinating our APHA Summits. We had our first Summit adventure in San Diego a few weeks ago. What a delight! We all learned so much from each other! Next up… Newark / NYC, then on to Chicago, and two new groups of passionate advocates. (I can’t wait!) What few people understand is the amount of preparation required to make these Summits happen. It’s not so simple as everyone showing up in the same place at the same time to connect with

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Revisiting the Mean Girls in Our New Advocacy Environment

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The “mean girls” are at it again… or so I’ve been warned by a handful of APHA members. I’m not sure I agree. But I know one thing for sure: the world of the mean girls has shifted. Who are the “mean girls?” I first applied the moniker about three years ago to refer to nurses who believed that no one should be a patient advocate unless he or she is a nurse. I cited instances when a small handful of nurses had bullied other non-nurse advocates both at conferences, and through emails – yes, actively bullied. I outlined once and

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That Very Very Thin Line – Do NOT Be Tom!

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My husband and I moved two years ago to Florida where we now live in an “active adult” community*. We love it! We’re very happy here. We’ve met and made many new friends – people we have truly come to care about. I’m following in family footsteps. My parents did the same thing decades ago. They lived in a different city, but they, too, lived in an active adult community for 20+ years. My father, in a somewhat macabre voice, always called it “God’s Waiting Room.” And, as I learned again this past week, it turns out that we now

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STOP! HALT! Keep Quiet … or Lose Business

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image from Graham Richardson, Flickr

Last week two of my friends invited me to participate with them in a local March for Our Lives event being held Saturday. If you are tuned into the news and politics of today, you know that marches were held to support gun control to keep people, especially our children, safe from being victims of mass murderers. Hundreds of thousands of individuals marched on Washington, DC, and in hundreds of other cities to bring attention to this issue. To my friends’ invitation, I replied no. I couldn’t / wouldn’t go. But maybe not for the reasons you might think. It’s

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