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It’s the #1 Reason: YDKWYDK

They’re getting worse. Or at least it feels that way. I’ve just spent a week away, traveling across the country for both business and pleasure. While on the road, I’ve talked to dozens of people I’ve never met before. When the subject turned to the “what do you do for a living?” question, and I answered, almost every one of them regaled me with a story, one story more surprising, frightening or tragic than the next. Either they or a loved one have been caught short by the medical care system, leading to inconvenience at the least, or debilitation, a […]

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Alone, But Not by Yourself

“But she is so upset with me now!” That was the response from an advocate who wrote to me after an unpleasant encounter with a former client. Even though they had not worked together for more than a year, the client had contacted the advocate to ask for copies of her medical records. The client knew the advocate had acquired them when they worked together, she needed them, and she didn’t want to pay for them again. Fair request, certainly. The advocate should have been able to turn them over to the client quite easily, either electronically or on paper….

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8 Ways Your Advocacy Practice May Be Like The Giving Tree

(Channeling the Plain White T’s here…) The book is a childhood classic, Shel Silverstein’s The Giving Tree. It tells the story of a tree that gives all it has to a boy as he grows from little boyhood to adulthood. From providing shade and a place to climb, to allowing the boy to sell the apples it yields, to finally letting the boy (now a man) cut it down to build a house, and then later build a boat out of it. In the end, when the tree has nothing left to give, “Boy” simply sits on the Giving Tree’s

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Can an Advocate Do More Harm Than Good?

Yes, sadly (although rarely) a patient advocate might do more harm than good. I was reminded of this recently when I heard from an APHA member who had picked up the ball from another advocate (not an APHA member) who had totally messed up the work a client-patient needed to have done – an advocate who had actually made the client’s situation worse. The problem-creating advocate had been working with her client through a hospitalization. As far as we know, that work went well. Her core business is medical-navigational advocacy. However, later, when the client’s hospital bill arrived, the client

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Broken Hearts Remind Us to Show Sympathy and Empathy

Joey Eisch, the 12-year-old son of friends of ours, was a major goofball with an enormous smile, a contagious laugh, and a sheer love of life.The photo above gives you a sense of him. It was taken at his parents’ wedding just two months ago – a wedding my husband and I attended, where we had a few minutes to spend with Joey. Just such a happy dynamo of a boy. Then, on Friday, July 24, Joey was killed while riding his bicycle.

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A Second Opinion Isn’t Good Enough

I’ve stewed over this for years, since 2013 when he was first arrested. But ever since Farid Fata was sentenced to 45 years in prison (ONLY 45!) for fraud, I’m like a dog with a bone. I just can’t let go. Last week I took at look at the Farid Fata case. He is the (former) oncologist who sentenced 553 people to their death or a lifetime of illness or financial bust by lying to them – telling them they had cancer they did not have, then treating them with chemo they didn’t need and ruining their lives. The 45

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How Professional Patient Advocates Would Have Stopped Farid Fata

On Friday, Dr. Farid Fata was sentenced to 45 years in prison in the state of Michigan. If you read or watch the news reports you would think the reason behind his long sentence had something to do with the fact that he had diagnosed 500+ people with cancer they didn’t really have, told them they needed chemo, then treated them for those cancers they didn’t have. As a result many died, some will deal with the aftermaths of unneeded chemo for the rest of their lives, some are ruined financially in medical debt, and worse. The headlines read things

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