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When Life Gets In the Way

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Sometimes life just sucks. At least that’s my conclusion after hearing recently from too many friends who are suffering various horrible things – health related, money related, death related, job related. And that’s just the friends who have shared their sucky situations. Some of those friends are patient advocates, and among them are some very difficult health situations – cancer, a brain tumor, a stroke, a car accident… sometimes affecting themselves, other times affecting a loved one – a spouse, a child, a parent. I’m stunned, floored, worried, and my biggest frustration is that there is not a darned thing […]

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Why I Hope These Pigs Never Fly – and You Should, Too

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This is the question that has plagued me as the director of a professional patient advocacy organization since it was first launched. It’s a question that usually comes from someone who is just thinking about becoming a patient advocate, one who hasn’t yet gotten his or her feet wet in our growing puddle of advocacy, ethics and best practices, although sometimes it comes from a more seasoned, yet not-yet-financially solvent advocate. It is asked in a hopeful manner, as if it is the answer to prayers – or at least payment. It’s at the very least naive, and at the

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The Advice That May Tick You Off

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In 2012, I blogged about this very topic. One ticked-off reader then attacked me on Twitter. A day later, both she and another member of The Alliance of Professional Health Advocates left the organization, both citing the post. Ouch. But it was good advice then, and it’s still good advice today. So at the risk of provoking additional readers, I’m going to wade into those waters again. Since most of us are self-employed, in the process of either starting or growing a professional practice, you’ll find that this advice will serve you very well, even if it IS maddening or

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Goldilocks, Dad and Finding Care That’s Just Right

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My dad retired in the 1980s. In addition to his pension he had also earned health insurance coverage for the rest of his life. Over time, as you can imagine, the actual value of that insurance became more and more evident; In all likelihood, it was a many-years-of-life saver, because he lived until 2012. But then, I think his health insurance may have killed him, too. Dad retired early at the ripe old age of 60, because when he was 59, he was diagnosed with prostate cancer. His resulting surgery did not successfully remove all the cancer cells, so Dad

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It’s the #1 Reason: YDKWYDK

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They’re getting worse. Or at least it feels that way. I’ve just spent a week away, traveling across the country for both business and pleasure. While on the road, I’ve talked to dozens of people I’ve never met before. When the subject turned to the “what do you do for a living?” question, and I answered, almost every one of them regaled me with a story, one story more surprising, frightening or tragic than the next. Either they or a loved one have been caught short by the medical care system, leading to inconvenience at the least, or debilitation, a

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Alone, But Not by Yourself

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“But she is so upset with me now!” That was the response from an advocate who wrote to me after an unpleasant encounter with a former client. Even though they had not worked together for more than a year, the client had contacted the advocate to ask for copies of her medical records. The client knew the advocate had acquired them when they worked together, she needed them, and she didn’t want to pay for them again. Fair request, certainly. The advocate should have been able to turn them over to the client quite easily, either electronically or on paper….

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8 Ways Your Advocacy Practice May Be Like The Giving Tree

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(Channeling the Plain White T’s here…) The book is a childhood classic, Shel Silverstein’s The Giving Tree. It tells the story of a tree that gives all it has to a boy as he grows from little boyhood to adulthood. From providing shade and a place to climb, to allowing the boy to sell the apples it yields, to finally letting the boy (now a man) cut it down to build a house, and then later build a boat out of it. In the end, when the tree has nothing left to give, “Boy” simply sits on the Giving Tree’s

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