health advocates and navigators

Help Us Assess the LoveFest!

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Once upon a time, the word “advocate” was contentious: doctors didn’t want us in the room, nurses didn’t want us next to a hospital bed, and health insurers thought we patient advocates were nothing but troublemakers. But in recent years there seems to have been a major shift in attitudes. I’m hoping you can help us assess that. This point came up in several recent conversations with people who have been doing advocacy work for many years; who have been able to observe attitudes for quite awhile, and who tell me they have seen this shift with their own eyes. …

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B*tching and Moaning – Therapeutic and Educational

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It doesn’t happen often, but when it does, it’s always an eyeopener and usually quite unsettling. When done well, and handled well, it can turn out to be therapeutic, and has the potential for great opportunity. I’m talking about moaning, groaning, complaining and yes – b*tching. Whether it’s a client complaining about an advocate, or the other way around, sometimes it’s fair and understandable, sometimes not. Sometimes it can escalate. Other times it can be diffused. In all cases we can learn from complaints. So let’s take a look.

Serving One’s Country as a Healthcare Soldier

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Over the holiday weekend – Memorial Day Weekend – I pondered the sacrifices soldiers have made for our country. I expect you did, too. I’m married to a retired soldier. My husband spent 20 years in the US Air Force during the VietNam War era. I’m so very, very proud of him and his service. Patriotic holidays have a special meaning to us because, well, he lived it. (I was not married to him in those years.) We are grateful to, and honor those who served, including those who lost their lives. All this pondering, and the tendency of my …

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Polishing Our Advocacy Rocks

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I’ve just returned from Newark where we held the second of our 2018 APHA Summits Networking Events. About 30 advocates attended, with backgrounds ranging from leaders (long-time advocates who have built successful advocacy businesses) through a handful of folks who are just getting started and who arrived as sponges intending to absorb everything they could. The experience was, in a word, magical. The energy in the room was electric.There was a constant buzz and hum of shared ideas and experiences. There were the usual words of advice that everyone has read or heard in the past, mixed with some surprises …

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When Life Defies Logic

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…then it’s time to get logical. And logic will triumph! As many readers know, I’m in the process of coordinating our APHA Summits. We had our first Summit adventure in San Diego a few weeks ago. What a delight! We all learned so much from each other! Next up… Newark / NYC, then on to Chicago, and two new groups of passionate advocates. (I can’t wait!) What few people understand is the amount of preparation required to make these Summits happen. It’s not so simple as everyone showing up in the same place at the same time to connect with …

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Revisiting the Mean Girls in Our New Advocacy Environment

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The “mean girls” are at it again… or so I’ve been warned by a handful of APHA members. I’m not sure I agree. But I know one thing for sure: the world of the mean girls has shifted. Who are the “mean girls?” I first applied the moniker about three years ago to refer to nurses who believed that no one should be a patient advocate unless he or she is a nurse. I cited instances when a small handful of nurses had bullied other non-nurse advocates both at conferences, and through emails – yes, actively bullied. I outlined once and …

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That Very Very Thin Line – Do NOT Be Tom!

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My husband and I moved two years ago to Florida where we now live in an “active adult” community*. We love it! We’re very happy here. We’ve met and made many new friends – people we have truly come to care about. I’m following in family footsteps. My parents did the same thing decades ago. They lived in a different city, but they, too, lived in an active adult community for 20+ years. My father, in a somewhat macabre voice, always called it “God’s Waiting Room.” And, as I learned again this past week, it turns out that we now …

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