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health advocates and navigators

What Do Your Patient Clients Expect from You?

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Ilene Corina is a long-time patient safety advocate who often sits by patients’ bedsides in hospitals to keep them safe during their hospital stays. A recent blog post of hers asks the question: when a patient or caregiver hires a patient advocate, what do happens if, despite everyone’s best efforts, the outcomes are negative? Of course, the answer depends on a number of factors, including the fact that not all advocate services are cut and dried and easy to define. Further, I have to think that sometimes an advocate is hired with one set of expectations, as understood by the […]

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Need to No – Giving Too Much

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One of my favorite things about patient advocates and navigators is that they are very generous, kind and giving people. They figure out what needs to be done, and they step up to the plate to do it. But one of my frustrations with patient advocates is that some are too generous, too kind, too giving. Too many have never learned where to draw limits, how to assess when they’ve taken on too much, or are in danger of taking on too much. They just don’t know how or when they “need to (say) no.” Conversations with two APHA members

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It’s the Universe Calling: Time for Plan B

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A few months ago, I was invited to speak in June during a one-day program for members of the Pennsylvania Bar Association on the topic of recovering from a catastrophe. Attorneys who attend will learn about the things they need to do should something devastating happen in their lives (an accident, caregiving for a loved one, a fire, whatever….) About ten days ago, I heard from a dear dear friend that he has been diagnosed with a terminal disease. Prognosis, just a few months. I am devastated – my heart just aches for him, his family, and yes, for myself,

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What Health Advocates Can Learn from 9/11

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With the demise of Osama bin Laden, I’m reminded of experiences I can share with patient and health advocates and navigators that will help us do our jobs better. Many readers of this blog know that the reason I do the work I do is because I was diagnosed with a rare, terminal lymphoma in 2004. Being told I had a terminal disease was heart-stopping and terrifying. Even today there are certain triggers that drum up all that emotion. Post traumatic stress rears its ugly head…. Of course – I don’t wish that for anyone who ever reads this blog!

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Why Do You Choose to Be a Patient Advocate or Navigator?

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During the past few years of connecting with patient advocates and navigators, I’ve asked dozens (maybe hundreds) of people why they chose patient advocacy work. Each person has one, individual, personal answer to that question, but there are an astounding number of similiaries. Among them: They believe they were cut out to help patients in need. They have had some sort of experience that tells them that whatever they’ve been doing to that point is no longer enough. Working with patients, helping them navigate and find improved outcomes from the healthcare system, feels like a higher calling. They don’t like

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Health Advocacy and Healthcare Reform

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If you know and understand healthcare reform in the United States, please raise your hand and shout “I do!” <<hmm… I hear crickets…>> That’s right. There is no one who understands it, including Kathleen Sebelius (Secretary of Health and Human Services), or Donald Berwick (nominated to lead CMS). It’s too complex, too long and frankly – just plain daunting. But we are healthcare professionals. We make our livings understanding healthcare systems. So if we are confused by the complexity of healthcare reform, just imagine how patients and caregivers feel! Add to that all the changes going on at the state

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Private Professional Patient Advocates Week

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Patient advocates and navigators are my heroes. As such, I am thrilled to announce the first Private Professional Patient Advocates Week (planned to be an annual event) – a week of recognizing the talents and contributions of the several hundred private patient advocates across the US and Canada. “Thrilled” may actually not be strong enough. Over the past couple of years, I have had the privilege of meeting dozens of private advocates – people who are dedicating to smoothing the difficult path through the healthcare system. They lead their charges to improved health, they protect them from medical errors and

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