empathy

Don’t Shoot the Messenger

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Something I’ve noticed over the past two years or so is that people who write to me for help seem to be getting increasingly belligerent when they don’t like the information I share, or reply to their questions or requests. Three examples: A woman wrote to me through my About.com Patient Empowerment site, asking me to please make a phone call to her psychiatrist to tell him that she needed a higher dose of Xanax. I replied to her to say that first, I don’t work directly with patients – I write and speak and run an organization. Further, that …

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Client Discussions: Where Do Spirituality and Religion Come In?

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My travels over the past two weeks have ultimately taken me to Florida where I’ll be staying for awhile to spend time with my dad. It’s the latest in many, many visits, which I mention only because that means I have gotten to know many of Dad’s friends over the years, too. In fact, I’ve gotten to know a handful of them very well, so that I actually seek them out once I get here to be sure I have the opportunity to spend some time with them. One such friend is a gentleman I’ll call Jim, who lives next …

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Getting Your Clients Past Magical Thinking

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Today’s post is very personal, reflecting a situation I believe many families go through, brought on by any number of attitudes and fears. I’m hoping that by sharing it, you can find a role for your advocacy work; a way to help families who need someone to provide a reality check. It’s about providing a gift to some of your patients and their families – in effect, giving them permission to say no to further treatment. As I thought about the situation, I remembered back many years ago when my mother, who at the time was in her 10th year …

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10 Lessons Patient Advocates and Navigators Can Learn from the Superbowl

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I’ll confess that I’m not a big football fan. And I’m certainly not a big fan of sports metaphors (which actually drive me crazy in business because I think they are exclusionary – not everyone understands them.). But I am a fan of learning good business lessons from the experiences we have and the activities that are going on around us. And the lessons we can pull from the Superbowl are, well… super. So please forgive the sports metaphors for the moment, and see what you can learn: 1. The Superbowl is about excellence. Only the top two teams in …

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Improving Patient Relationships – What I Told the Providers

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To say my trek to Alaska was overwhelmingly positive wouldn’t begin to touch the real experience. Alaska itself was glaciers, salmon, midnight sun, king crab legs, and learning that in Fairbanks everyone has an extension cord popping out the front of their cars, so they can plug them in during the winter to keep the engine and oil from freezing. Who knew? But the most fulfilling experience was working with the people who attended the workshops I taught. Warm, open, receptive, fun, willing to participate and learn, they were doctors, nurse practitioners, nurses, nurse educators, dieticians, pharmacists, a psychiatrist, front …

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Need to No – Giving Too Much

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One of my favorite things about patient advocates and navigators is that they are very generous, kind and giving people. They figure out what needs to be done, and they step up to the plate to do it. But one of my frustrations with patient advocates is that some are too generous, too kind, too giving. Too many have never learned where to draw limits, how to assess when they’ve taken on too much, or are in danger of taking on too much. They just don’t know how or when they “need to (say) no.” Conversations with two APHA members …

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What Health Advocates Can Learn from 9/11

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With the demise of Osama bin Laden, I’m reminded of experiences I can share with patient and health advocates and navigators that will help us do our jobs better. Many readers of this blog know that the reason I do the work I do is because I was diagnosed with a rare, terminal lymphoma in 2004. Being told I had a terminal disease was heart-stopping and terrifying. Even today there are certain triggers that drum up all that emotion. Post traumatic stress rears its ugly head…. Of course – I don’t wish that for anyone who ever reads this blog! …

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