decision making

The Rest of the Story X 4

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Channeling Paul Harvey today…. (Don’t know who Paul Harvey is? Maybe you’re too young, or you never spent much time listening to Talk Radio… Paul Harvey was famous for his radio broadcasts called “The Rest of the Story.” His stories always featured a twist or turn, or something unexpected.) Over the past few months, I’ve blogged about points, lessons, or stories, some of which have interesting follow-up or twists to them. So I’ve put them into one post for you – and thus we’re channeling Paul Harvey.

Polishing Our Advocacy Rocks

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I’ve just returned from Newark where we held the second of our 2018 APHA Summits Networking Events. About 30 advocates attended, with backgrounds ranging from leaders (long-time advocates who have built successful advocacy businesses) through a handful of folks who are just getting started and who arrived as sponges intending to absorb everything they could. The experience was, in a word, magical. The energy in the room was electric.There was a constant buzz and hum of shared ideas and experiences. There were the usual words of advice that everyone has read or heard in the past, mixed with some surprises …

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When Life Defies Logic

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…then it’s time to get logical. And logic will triumph! As many readers know, I’m in the process of coordinating our APHA Summits. We had our first Summit adventure in San Diego a few weeks ago. What a delight! We all learned so much from each other! Next up… Newark / NYC, then on to Chicago, and two new groups of passionate advocates. (I can’t wait!) What few people understand is the amount of preparation required to make these Summits happen. It’s not so simple as everyone showing up in the same place at the same time to connect with …

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Revisiting the Mean Girls in Our New Advocacy Environment

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The “mean girls” are at it again… or so I’ve been warned by a handful of APHA members. I’m not sure I agree. But I know one thing for sure: the world of the mean girls has shifted. Who are the “mean girls?” I first applied the moniker about three years ago to refer to nurses who believed that no one should be a patient advocate unless he or she is a nurse. I cited instances when a small handful of nurses had bullied other non-nurse advocates both at conferences, and through emails – yes, actively bullied. I outlined once and …

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Should Insurance Provide Reimbursement to Independent Advocates?

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I had interesting conversations with someday-advocates last week. I love those conversations; I always learn something from them which I can then bring back to the Alliance and the information we share with members. And then again, sometimes the questions I hear are the same ones that have cropped up over and over again, including today’s question: Is there insurance reimbursement for the work of an independent advocate? This time, I’m going to answer that question with a few questions of my own.

That Very Very Thin Line – Do NOT Be Tom!

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My husband and I moved two years ago to Florida where we now live in an “active adult” community*. We love it! We’re very happy here. We’ve met and made many new friends – people we have truly come to care about. I’m following in family footsteps. My parents did the same thing decades ago. They lived in a different city, but they, too, lived in an active adult community for 20+ years. My father, in a somewhat macabre voice, always called it “God’s Waiting Room.” And, as I learned again this past week, it turns out that we now …

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How Is Patient Advocacy Like Doing the Laundry?

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Would you ever hire someone to do your laundry? Many of us would answer Yes! Of course! — IF we had the money. A big IF! I suspect, however, that most of us would say no, knowing that washers and dryers make it easy to get the family laundry done, even if we dislike the task. Further, we all think we know how to get our clothes clean (short of occasional coffee and ketchup stains). Even if we feel laundry-challenged, it doesn’t seem to be enough of a problem that we would actually pay someone else to do it. However, …

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