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advocacy ethics

Saying No and Refusing to Serve: How to Draw That Line

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If we have learned anything about ourselves in the past 10 days, it’s that there are some people in this world we will never be able to understand or condone. Between the skirmishes in Charlottesville, VA, and the killings in Barcelona and elsewhere; I am reminded that I will NEVER understand hate. I will NEVER condone racism, or neo-nazi-ism, or jihad, or white supremacy – or killing. Period. As I watched it all unfold through the news, I asked myself, What would I do if one of those people whose attitudes and opinions I find so repugnant asked me to […]

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What Gator Head Windchimes Can Teach Us About a Healthy Advocacy Practice

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My husband and I moved 14 months ago to Florida. Since then, each time I’ve been on the highway, I’ve seen billboards which have fascinated me. They advertise the Florida Citrus Centers which are roadside tourist stops where you can buy (yes, you guessed it) – oranges, grapefruit, limes and other fruit, plus other Florida-related souvenirs. But until last week, I had never stopped at one of the Citrus Centers, despite a 14 month curiosity… The curiosity is right there on that billboard photo above: Gator Head Wind Chimes. What on earth would an alligator head wind chime look like?

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You Can’t Do Life, or Business, Without Plan B

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You know Plan B. Plan B is your go-to option when what you thought would work, didn’t. It’s the answer to the question, “What will you do when life gets in the way?” I was reminded of Plan B last week when, after days of internet problems due to some new construction in the area, the internet was finally stable, and I had taken a very relieved deep breath and settled into a nice big project online…. …When BAM! Down went the internet again! Only this time the outage was caused by some workers next door digging up the edge

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An Anniversary, Meltdowns, Blessings, and Fuel for Advocates

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Please indulge me today. I’m going to share a very personal experience I rarely think about anymore, in hopes it will propel some good advocacy. Sometimes months go by when I barely give it any thought. Other times, like lately, it seems like everywhere I turn, I just can’t escape it. So here you go:

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Advocates Are Afraid to Do This – Until They Love to Do It

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Earlier this year we hosted one of our APHA Workshop weekends*, with about 30 individuals who are somewhere in the process of growing an advocacy practice. The APHA Workshops were originally designed to support the BUSINESS of advocacy only. The idea was that most advocates have abundant skills and abilities to advocate – they’ve advocated for themselves and loved ones, and sometimes non-family patients for years. What they didn’t know was how to successfully start and run a sustainable business / practice to allow them to do their advocacy work. For five years, we hosted those original workshops all over

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Part IV: The Dirty Dozen Skills, Abilities, and Attributes of Successful Health and Patient Advocates and Care Managers

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And, finally, the fourth and last in our series of skills, abilities and attributes that all successful advocates and care managers must. Find Part I of the Dirty Dozen. Find Part II of the Dirty Dozen. Find Part III of the Dirty Dozen. We’re wrapping up with 3 additional concepts that are important to the success all private advocacy and care management practices. Yes – I know the total will be 16 (and we promised only a dirty dozen!) – see Part I about my inability to count 🙂 ) Which of these describe you and your abilities? Which of

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Part II: The Dirty Dozen Skills, Abilities, and Attributes of Successful Health and Patient Advocates and Care Managers

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Yes, Part II, as promised in our first installment last week when we began with the first four attributes of successful advocates. Find Part I of the Dirty Dozen. Which of these describe you and your abilities? Which of them don’t? Where do you go from here? Do your own assessment! Part II: Abilities of Success Health/Patient Advocates and Care Managers 5. Health and patient advocates and care managers have an intimate understanding of the healthcare system. Important – I do not mean you must understand medicine. In fact, you really don’t need to understand medicine – as in diagnosis

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