patient advocacy

We Get By With a Little Help from Our Friends

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(Can’t you just hear Ringo in your ear? and yes, if you understand that reference, you’re dating yourself!) This week I was reminded several times about all the folks who are trying to develop their patient advocacy practices on their own, thinking they need to conquer it all by themselves. They don’t. They shouldn’t. And they run the risk of failing in business until they start thinking differently. Here’s why: Patient Advocacy is a time-intensive, hands-on undertaking. Each client needs a great deal of attention, usually immediately. Yet time isn’t something we can find more of; there are still only […]

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Going to Jail, Spinning Plates, Peace of Mind – and You

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spinning plates

Suppose you are asleep one night, and the police break down your front door, yank you out of bed, arrest you, and take you off to jail…. What would you do? Who would you call? It doesn’t matter whether you are innocent or guilty – you have been blindsided by something unexpected, and now you have to deal with it by navigating a system you know nothing about…. I suspect you would call a lawyer to help you through it, right? A lawyer is the person who can at least provide the peace of mind that knowledge of the system

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Sharing Healthcare’s Dirty Little Secrets

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I’ve just written a post at About.com about my recent mammogram experience where the breast center I’ve gone to for more than a decade managed to dissolve my trust of their service in the span of one phone call. Is it possible that they were being honest and I have no reason to lose my trust in them? Yes, of course. Maybe I’ve jumped the gun – or maybe not. But it doesn’t really matter. Because whether they deserve my distrust or not, I will never trust them again. No, not a chance. (Just because I’m paranoid doesn’t mean they

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Insanity Is Repeating the Same Behavior…

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… and expecting different results. It’s a favorite saying of mine, which I used to have posted just above my desk as a reminder that if I wanted to improve my work (or my life!) then I needed to take a fresh look at what I was doing and make adjustments. It’s a similar sentiment to another favorite saying of mine which is: If you always do what you’ve always done, then you’ll always get what you’ve always got. Both these sayings came to mind this week as I responded to several advocates and almost-advocates about challenges they were having.

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Pushing Back

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I truly dislike negativity. I suspect you do, too. As a kid, I would avoid arguments like the plague. I hated the upset that went along with it – that feeling of frustration, and churning in my stomach. Ugh. As I got older, I realized that negativity was always going to be a part of my life whether I liked it or not. Avoiding it was not an option, because avoiding it meant I wasn’t sticking up for myself or my loved ones or the tenets I believed in. Avoiding it meant I couldn’t right a wrong – or learn

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Filling the Gap Changes Everything for Your Patient

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(Note: June 2016 – this post is now more than 3 years old. See an update below.) In the category of “life imitates career”…. In 8+ years of blogging, and with the exception of the personal experience that was the impetus for my career as Every Patient’s Advocate, (later the founder of AdvoConnection and the Alliance of Professional Health Advocates), I have rarely (if ever?) shared my personal medical experiences. Truth is, until now, they have been, thankfully, quite boring and not worth writing about. Yes, until now… because now, “the lump” has returned. Lump #1, discovered, excised, misdiagnosed as

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The VITAL Piece of Information the Press – and Many Patients AND Advocates – Are Missing

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It happened one more time this week, frustrating me one more time this week, making me feel like a broken record again this week and then realizing…. hey! Why not make this point louder and clearer enough so that YOU can all be a part of my “point well spoken” army! What am I talking about? The press – which has produced one more article this week about this “new career” of patient advocacy or navigation, making it sound like a grand dream come true for anyone who cares about helping patients. None of these articles have been realistic about

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