patient advocacy

Thrills – and Some Frustration – as We Recognize Private Professional Patient Advocates Week 2014

This year, March 3 to 9th, marks our Fourth Annual Private Professional Patient Advocates Week – capping the 5th year of existence of AdvoConnection and the Alliance of Professional Health Advocates. Congratulations to us! (Back patting and hugs all around….) It’s easy to see why we are thrilled.

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The 2014 Schueler Patient Advocacy Compass Award… and the winner is…

And – we have a winner! The Alliance of Professional Health Advocates, on behalf of its selection committee (comprised of past winners plus Ken Schueler’s daughter, Alexandra), is pleased to announce the 2014 winner of the H. Kenneth Schueler Patient Advocacy Compass Award: Karen Zorrilla, MD of Houston, Texas. Congratulations Karen! The choice was both easy and difficult. Karen’s qualifications are outstanding – an easy choice. However, all our applicants are outstanding examples of excellence in their service to their clients and our profession. The competition was stiff. There were no wrong choices. In fact, this year’s applicants who did

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Eight Hour Day? Get Paid for Sixteen

Patient advocate Joan H. Elper has been an independent advocate for more than a year now. She has worked with seven clients during that time, and is growing her practice slowly but surely. Her focus is medical-navigational in nature, helping mostly elderly parents of the adult children who hire her understand what their doctors tell them. She also has two cancer patients who want to self-direct their care more than the doctors would like, so some of Joan’s reward comes from seeing those clients make informed decisions based on their own wants and needs, and finding that their doctors have

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Doing What You Love Right Into a Hole

deep black hole

Each week I’m contacted by a handful of people who have just begun thinking about becoming professional patient or health advocates. Often they share long stories – many paragraphs or several minutes long… describing years of advocacy for a loved one, or a resume full of nursing experience, as if they need to convince me that they would make a good advocate or they run the risk of not hearing back from me. These long, heartfelt messages are about the intersection of passion for advocacy – and the wish to use that passion to make a living. Advocacy fits them.

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Death, Dying, Unhappiness and Misery Have Been on My Mind

Several weeks ago I was contacted by Ramona*, a woman in her 50s who is leading what she considers to be a horrible, no-quality life. She is tied to machines for all but about 2 hours a day, she needs regular surgeries to stay alive, she can’t eat food (liquids only), there is no prospect for improvement, and she has no family… She has no hope, and she wants to die. She has tried discussing options with her doctors, but to no avail. She wants to stop her treatment, enter hospice care and receive palliative care instead. That should be

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All Dressed Up With Big Places to Go

(Update: December 2017. This post was written in 2014 (see the URL in your browser bar) when we launched the “new” directory – pictured below. Since then, our even newer directory was launched in Fall 2017. We continue to upgrade and update for directory listed advocates!) When I was a first grade teacher (which, I dare say, might have been before some of you were born), I got a huge kick out of one observation I made in early January every year. My observation was that my students returned after the holiday break – and once again – their pants were

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Let’s Do a Refresh for 2014 – A Tipping Point for Private Advocacy!

The holidays are behind us. The fre-e-e-zing cold has arrived in most of North America. We’re feeling a little sluggish perhaps…. and maybe need a kick in the behind to get ourselves going in 2014. 2014. That means we’re in our fifth year of building this new profession…. Let’s make this the Year of the Independent Patient Advocate’s Tipping Point! (can I hear an A-MEN?) Are you ready for it? If not, and if you’re in practice working with clients, helping them with the dozens of services they need, then you can probably use a reminder and refresher for those

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APHA Blog : The Alliance of Professional Health Advocates
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