advocacy business

Patient Advocacy on the Cusp of the Tipping Point

A tipping point: a dictionary definition will tell you that it means “the crisis stage in a process, when significant change takes place.” And for patient and health advocacy – we are almost there. Almost at the tipping point. I first learned the term when I read Malcolm Gladwell’s book by that title, The Tipping Point. I learned that the term is borrowed from epidemiology. That is, when a contagious organism infects enough people to go from just a few sick people, to hundreds, or thousands or millions – the tipping point occurs in that modicum of space or time, …

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First Schueler Compass Award Winners

The first AdvoConnection Business Institute is behind us – a grand learning time was had by all. During the conference, the establishment of the H. Kenneth Schueler Patient Advocacy Compass Award was announced by our “mystery” keynote speaker – Alexandra Schueler, Ken’s daughter. Her speech was one of the best I have ever heard in any venue, under any circumstances – quite remarkable for a young woman who is just starting out in the world. Alexandra shared her dad with us, what she knew about his work, and his relationship to his work. She evoked laughter and tears, respect and …

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Announcement: The Ken Schueler Patient Advocacy Compass Award

As announced this morning at the AdvoConnection Business Institute, and in honor of the spirit, legacy and memory of Ken Schueler, our friend and colleague who passed away last spring, we’d like to invite you to apply for the Ken Schueler Patient Advocacy Compass Award. The H. Kenneth Schueler Patient Advocacy Compass Award recognizes Ken’s role in defining and growing patient advocacy as a valuable service that improves the lives of its client-patients. In his name and honor, it supports the growth of this career, and the work of individuals who wish to succeed by following in his footsteps. Ken’s …

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And Above All – Establish Trust

For many years I’ve heard from patients across the country with questions about their healthcare. Not medical questions; rather questions about something in the healthcare system that isn’t working the way they want, or expect it, to work. They can’t get their doctors to answer their questions, or the insurance company has turned them down for a test or treatment, or they got a bill they didn’t expect – or – ______ (fill in the blank with hundreds more questions!) There is one theme that runs through every question; – that is – a lack of trust. In every case, …

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The Great Divide: The Haves and Have Nots

(Originally posted June 2011. Updated June 2019) The health and patient advocates who are listed at AdvoConnection are all private practice advocates; that is, they work directly for patients and the patients pay them. Their services are not covered by insurance, their services aren’t donated or free. This is how these advocates make a living – they are paid by patients or caregivers. That seems to upset some people, and lately, it seems like a number of people have taken some sort of offense at that idea – as if patients or caregivers should not have the right to seek …

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