Please indulge me today. I’m going to share a very personal experience I rarely think about anymore, in hopes it will propel some good advocacy. Sometimes months go by when I barely give it any thought. Other times, like lately, it seems like everywhere I turn, I just can’t escape it. So here you go:
This year I can tell I’m finally getting beyond the trauma. It’s a feeling of freedom to some extent, but sort of a shame to another. And you know me – I always end up analyzing these things (or, perhaps over-analyzing them) – enough so that I’m going to share some of that analysis with you. The trauma I refer to was the cancer (lymphoma) misdiagnosis in 2004 that propelled me to change careers to patient empowerment, and eventually advocacy. By trauma, I mean that I was told I that in a few short months I would be dead, and …
Of Heroes, Trust, Discord, Arrogance, and Karma – Part I Continue Reading
On Friday, Dr. Farid Fata was sentenced to 45 years in prison in the state of Michigan. If you read or watch the news reports you would think the reason behind his long sentence had something to do with the fact that he had diagnosed 500+ people with cancer they didn’t really have, told them they needed chemo, then treated them for those cancers they didn’t have. As a result many died, some will deal with the aftermaths of unneeded chemo for the rest of their lives, some are ruined financially in medical debt, and worse. The headlines read things …
How Professional Patient Advocates Would Have Stopped Farid Fata Continue Reading
